A local mom is doing everything she can do give her son the best life possible.
14-month-old Bentley Ameel is diagnosed with MECP2 Duplication Syndrome, which came as a shock to his parents, Amanda Hann and Jeff Ameel.
"We were told he will probably never talk, and will probably never walk," says a choked up Hann. "We still haven't really come to terms with it."
But through their initiative Bentley's Journey, Hann hopes they can raise funds and awareness for Bentley and other children with his condition.
Hann adds Chatham-Kent's Children's Treatment Centre has played a big role in Bentley's early development.
"Bentley has been going there since he was five months old," explains Hann. "At that point he hadn't been meeting his milestones, he wasnt sitting up. So we started coming to the Treatment Centre for physiotherapy, and he's really shown improvement."
Hann says the next step for Bentley is getting him a new walker. A recent Ford test drive event from Victory Ford in Chatham raised $7,500 for the Children's Treatment Centre, while Hann helped organize games, and carnival events to raise another $2,000.
